Good friends of mine Whit and Lindsey (Mathie) Coleman are THE most incredible parents who have handled the challenges they've been given with so much courage. Their adorable son Jonas and their brand new baby girl Maggie both have SMA Type I. This disease has incredible challenges that come with it and unfortunately a short lifespan. Whit & Lins have been grateful through all of it for the time they have had to spend with Jonas so far (who is almost 3!!) A carnival is being put on October 9th to help raise funds to help their sweet family. The location and time are still being worked out. I will post as soon as I know the info! Anybody and everybody that can come please do!! It promises to be super fun. Even if you can't make it that day feel free to donate whatever you can at a link on their blog which is http://www.coleman2family.blogspot.com/
Their blog also has a very touching video explaining more about their situation. I have no idea how to link that to mine but go check it out.
Sorry this post is so messy. I am computer illiterate and remember....I never blog :)